Weekly New Threads Update 23-08-15
Aug 23, 2015 17:59:57 GMT
Post by s162216 on Aug 23, 2015 17:59:57 GMT
Hi PID Support Forum Members,
Here is our latest weekly new threads update; these are emailed to members every Sunday and list threads posted on the forum in the past week.
There are two new threads in the "General Primary Immunodeficiency Discussion" area (primaryimmuno.proboards.com/board/4/general-primary-immunodeficiency-discussion):
-"Anti-inflammatory Effects of SCIG?" (1 response so far)
A new member with CVID and an autoimmune condition came across an old post on the forum by "terryhalper", and is inquiring about a possible loss of anti-inflammatory effects with subcutaneous immunoglobulin compared to intravenous immunoglobulin.
-"infections /subcuvia batches" (0 responses so far)
A member who is on subcutaneous immunoglobulin is asking if anyone else has found they get more infections with certain batches of Subcuvia compared to others. Additionally they are asking if any other men with PID suffer from low testosterone, and whether they also find testosterone supplementation injections to help with fatigue related symptoms.
In the "Newly Diagnosed Lounge" (primaryimmuno.proboards.com/board/7/newly-diagnosed-lounge):
"Starting IVIG tomorrow" (4 responses so far)
A newly diagnosed member started IVIG a few days ago now, and wants tips and experiences from those already on IVIG to make it easier.
Currently we just link to the forum areas in our weekly update email and Facebook list, but we would like to have members opinions about whether we should instead just link to individual threads to make them easier to access. We would appreciate your comments in the thread at primaryimmuno.proboards.com/thread/802/weekly-thread-list-emails-comments
Just to remind members that if you don't want to receive these weekly updates (we won't be offended!), then post a message saying so in the thread at primaryimmuno.proboards.com/thread/802/weekly-thread-list-emails-comments and we'll remove you from getting the updates (but this will NOT stop you from receiving other email messages from the forum). For more details about our weekly update service, please see primaryimmuno.proboards.com/thread/804/weekly-thread-emails-forum-concept
Remember that the forum can always be found at www.primaryimmuno.proboards.com and if you've forgotten your password then you can recover it at login.proboards.com/forgot/3391770 by providing your email address etc. Also just to alert you that your personal forum username is provided in the footer of this email.
We hope to see you on the forum again soon!
Thanks,
Sam, John and Gloria (The forum staff)
Forum Facebook Page: www.facebook.com/PrimaryImmunodeficiencySupportForum
Forum Twitter Stream: twitter.com/PIDsupportforum
Here is our latest weekly new threads update; these are emailed to members every Sunday and list threads posted on the forum in the past week.
There are two new threads in the "General Primary Immunodeficiency Discussion" area (primaryimmuno.proboards.com/board/4/general-primary-immunodeficiency-discussion):
-"Anti-inflammatory Effects of SCIG?" (1 response so far)
A new member with CVID and an autoimmune condition came across an old post on the forum by "terryhalper", and is inquiring about a possible loss of anti-inflammatory effects with subcutaneous immunoglobulin compared to intravenous immunoglobulin.
-"infections /subcuvia batches" (0 responses so far)
A member who is on subcutaneous immunoglobulin is asking if anyone else has found they get more infections with certain batches of Subcuvia compared to others. Additionally they are asking if any other men with PID suffer from low testosterone, and whether they also find testosterone supplementation injections to help with fatigue related symptoms.
In the "Newly Diagnosed Lounge" (primaryimmuno.proboards.com/board/7/newly-diagnosed-lounge):
"Starting IVIG tomorrow" (4 responses so far)
A newly diagnosed member started IVIG a few days ago now, and wants tips and experiences from those already on IVIG to make it easier.
Currently we just link to the forum areas in our weekly update email and Facebook list, but we would like to have members opinions about whether we should instead just link to individual threads to make them easier to access. We would appreciate your comments in the thread at primaryimmuno.proboards.com/thread/802/weekly-thread-list-emails-comments
Just to remind members that if you don't want to receive these weekly updates (we won't be offended!), then post a message saying so in the thread at primaryimmuno.proboards.com/thread/802/weekly-thread-list-emails-comments and we'll remove you from getting the updates (but this will NOT stop you from receiving other email messages from the forum). For more details about our weekly update service, please see primaryimmuno.proboards.com/thread/804/weekly-thread-emails-forum-concept
Remember that the forum can always be found at www.primaryimmuno.proboards.com and if you've forgotten your password then you can recover it at login.proboards.com/forgot/3391770 by providing your email address etc. Also just to alert you that your personal forum username is provided in the footer of this email.
We hope to see you on the forum again soon!
Thanks,
Sam, John and Gloria (The forum staff)
Forum Facebook Page: www.facebook.com/PrimaryImmunodeficiencySupportForum
Forum Twitter Stream: twitter.com/PIDsupportforum