IBS/Crohn's...upset tummy?

[syd]

Hello,

Anyone with CVID developed tummy troubles? It's hit me recently. Cramps, blood and mucus in stools, irregular movements, feeling nauseous after eating....it sucks soooo much! My doctor isn't sure what it is yet. I've had blood tests, stool tests, xrays and a colonoscopy and they didn't find anything wrong! I'm yet to be referred to a specialist. From a quick search on the internet, my symptoms seem to match IBS or Crohn's but what do I know! Anyone else had these problems? Could it be related to CVID?

Thank you lovely people!

[glowing]

Hi Syd.
My CVID was diagnosed in 2011 after years of breathing problems, sinusitis and I have Bronchiectasis. (sorry if spelling is wrong.) From the time I was born I have suffered with severe constipation. I even had a bowel resection because of the damage it caused but nobody has ever suggested that there could be a connection with CVID, even though I was told that I probably had CVID from a very young age. In recent years chronic constipation has been referred to as IBS, as is most types of chronic bowel problems. It seems 'tummy troubles' run (if you pardon the pun) in my family as I have relatives with Crohn's and two with chronic constipation. None of them has CVID.

I'm sorry for not being any help to you, but I do sympathise. My nephew suffers the same way as you and has undergone all the same tests, but still hasn't had a diagnoses. Like my other relatives he doesn't have CVID.

I hope you find a reason and can do something to make you better very soon.

Glowing.

[mali42]

Hi Syd.

Mine started with a stomach bug called Giardia while on holiday in turkey, the specialist diagnosed me with IBS and told me to try and get on with my life and try not to think about it, nine months later it went back to normal (relief), I have had bouts of uncertainty over the years but I think that is because of the antibiotics.

Maybe change your diet and try Probiotics which could help,

Hope it goes soon as its no fun having a dodgy tummy.

Malcolm.

[tfg3]

Before my diagnosis of PI, I had bowel issues, mostly diarrhea. I was diagnosed with colangial colitis and treated successfully with a medication by a colon and rectal surgeon who did my colonoscopy.
I think much of our immune system lives in our large bowel. So immune deficiencies would impact the GI system adversely.
I have been free of infections for about 10 years with my SCIG treatments each week.

Good Luck,
Teresa

[jillian93]

Hi Syd,

I experienced some of the exact same issues. I had them prior to being diagnosed with CVID, but as I'm sure you know, immune deficiencies and gastrointestinal issues go hand-in-hand. I've had the same tests as you, colonoscopy, endoscopy, x-rays, etc. My dad has Crohn's disease, so it would make even more sense that I would have it. However, after all the tests came back inconclusive or negative, my doctor diagnosed me with IBS-D. He put me on a medication called Viberzi, and I've been on it for about two months... huge improvement! I now rarely experience diarrhea, and my stomach cramps and nausea are gone.

Obviously each situation is different, but I hope you find the answers you're looking for! I know how frustrating the process can be, especially when results continually come back without answers.

Good luck!

Jillian

[syd]

Thank you everybody for your replies! It's comforting to know I'm not alone...although I wouldn't wish this on anyone. I decided to have a go at what's called the FODMaP diet, which is for people with IBS, and it's proven to be very very good. I haven't been able to see a doctor again about it because I'm travelling in Hungary but I will let you all know what they say when I return to the UK.

[liverbird]

I've had IBS symptoms more than half of my life. I've recently discovered that Psyllium Husk Powder has helped to settle my stomach amazingly.

[syd]

Ok I'll give it a go!