Feel so lucky

[slf]

That might seem odd,CVID and some of it's complications,but we have this forum(thanks Samuel) and can moan to,or learn from others,no need to suffer in silence. When I was first diagnosed I came to the PIA forum,I was a little reluctant to speak,everybody seemed friends and to know all about things I had no clue about,but although I didn't post for ages I did learn so much from reading the forum,I suspect there are a few now just like me then reading our posts.Well please don't hang back,we are friends but few of us have ever met.
What brought these thoughts on was memories of my diagnosis and operation for Chrones disease,over 40 years ago. How I could have done with a forum then,ignorance was the byword,I was given little or no advice and none that was any good. One doctor told me it was caused by toothpaste. My surgeon wasn't present at the op,I can imagine the scene(seen it on Holby!) registrar,standard op for appendicitis suddenly way out of his depth,on the phone to his mentor,it took about 10 hours,and was successful. The after affects were not pleasant,nor were the doctors 'what do you expect' one said,I felt guilty and didn't complain again. If only I had a forum to refer to then,obviously no Internet,no PC no laptop oh dear stone age!!
So thank you everyone,please take part and enjoy this
Steve

[bamber]

Glad you feel like that. Its a good place to be.

[glowing]

I too feel so lucky and slightly embarrassed about moaning when I only have infected eyes and a chest infection as my family seem to be going through so much more at the moment. As my mum isn't here I will take you up on the invitation to have a moan. You might regret it as it is a mega moan. My daughter has a heart condition, her husband who is 46 this year was diagnosed with alzheimers two years ago and her son who is 9 has suffered from absence epilipsy since birth. My brother had an anaphalactic shock and was in intensive care for six weeks last year and is still suffering the effects, my brother in law was knocked off his bike in February and suffered broken collar bone and four broken ribs and is waiting for an operation to have his scapula re-attached. My sister, his wife, has just been re-admitted to hospital to have an operation to clear an abcess following a burst and gangerous appendix. I have just received a call telling me my sister in law's cancer has spread to her lungs and she's in hospital waiting to have fluid removed from her lungs so she can breathe a little easier. Aaaaah! Thank goodness our family has a good sense of humour and we've been having a laugh about it all. If we didn't we'd surely not stop crying. Thank you for 'listening' and I hope you don't mind my mega rant. Glowing

[slf]

Glowing
That's one awful rough time your having,almost made me feel bit guilty for my optimistic post. But I am glad you have come on and had a moan,goodness you've got every right in the circs. I do hope that things start to improve a bit,they deserve to,great you've kept your sense of humour too,times like this.
My thoughts will be with you,let us know how things go
Steve

[mali42]

Nice post Steve and sometime doctors don't realise these flippant remarks can have a big effect on us when we are down through constant ill health.

Glowing
You certanly are having more than your share of bad luck and I hope things pick up soon.

My biggest moan today was at 6am this morning having to jump out of bed waking Pat up in the process with severs cramp in my calf muscle hopping around the bedroom saying ouch and it still hurts now :-(
Malcolm