Problem with clostridium difficle

[burkov]

Hello everyone,



I'll have to start with a question, because we're running out of options.

I recently introduced myself and my daughter here in the forum.



Unfortunately, she have a Clostridium difficile infection for the fifth time for the last 12 months.

She was on metronidazole the first time, but after recurrence she is only on vancomycin.



The thing is that we don't have too many immunologist in my country, not to say how many of them have experience with primary immunodeficiency patients.

After the last positive test, the doc said that we should wait to see if there is any diarrhea and than start with vancomycin.

She was fine for 3 weeks until last week, she had only one stool with mixed content, but she is farting often and had a few with mucus.

She also doesn't defecate very often. Maybe once for two days, sometimes more often.



The thing is that we are very worried about the often use of vancomycin and also, the frequency of recurrence of Clostridium difficile.



Does any of you have experience with such infection and also do any of you take probiotics, because our doc, says they develope another infection.



Thank you all, and I wish you nice healthy summer.

[shannon]

Hello my dear!

First I can say that pribiotics should not cause infection. They are in foods like yogurt and as far as I know they are found naturally in many foods.

Since being diagnosed with a Primary Immune deficiency I have dona a lot of google searches. Some of the best information can be found on the Mayo Clinch sites.

If you do not have experts in immunology close to you I am wondering if they can either send you and your daughter somewhere to see one or can they video conference with you and the medical team.

I hope it gets better for you and your daughter.

Shannon

[burkov]

Hi Shannon, and thank you for the information.

We were in France last year, but since than nothing much happened. Necker (in Paris) should've made DNA tests, but no results yet.
The only immunologist we can visit is in other city(we live in the capital...), we also go there if we have infections, for tests and everything about the health of Lina(my daughter).
The problem is there are no experienced immunologists in Bulgaria. Most of them are also working in oncology. The rest are saying that they don't have experience with such small children(she is almost 2 years old).
Even our Chief of immunology in Bulgaria is just on the diagnosis of primary immunodeficiency, rather than consulting and helping patients with their health care.

If you, or anyone can recommend a doc even overseas, for consultations over video conference, i would be very grateful.

Thank you for the kind words.