Newly IgG2/4 deficient

[rosie]

Hi
 I am 61 YO female with history of recurrent sinus and tracheal infections. Been on abx for years; recurrent sinus/urinary etc.. infections.
Have hx of HLA B 27 Arthritis (ankalosing spondilitis). Four years ago developed upper left quadrant pain to back. Last August dxd with multiple pancreatic cysts (Pre-malignant) and recent Small Intestinal Bacterial Overgrowth.
Two months ago tests revealed significal IgG2 and 4 deficiency (almost no 4) but low normal overall IgG.
Pneuovax challenge showed low but positive responses. My immunologist wants to rpt these soon to see if I can maintain titer.
He is toying with IVIG followed by SQIG but says he needs more proof.  My major concern is pancreatic- so I may be looking at serious surgery but I would like to try the IVIG/SQIG before I end up with a pancreatectomy.
Im scared. Ive been on levaquin for months and I can't get off of it due to throat and sinus infection
Suggestions welcome
IM SCareD

[mothergoose]

I was scared before I started IVIG, thought it would cramp my life style.

I was on IVIG for 4 months and switched to SQIG Hizentra, IVIG made me really sick for 4-5 days after each treatment, so I wondered if the treatment was worth it or not.

Once I changed to SQIG all thoses neg reactions were gone, after being on IGG for 6 months plus my infection rate kept going down.

I do treatments at home once a week, I have my life back, for years I was sick all the time, I could never make plans go anywhere be around people etc., I am back to living a full life. I may some restrictions that others don't have, such as fatigue and avoiding sick people, but my quality of life is some much better I can't imagine having to go back to living like that.