Post by charley on Nov 10, 2015 10:02:32 GMT
Hi all, wondered if I can ask a question. I have CVID diagnosed 2 years ago, on IVIG. I am 29 (very young obviously 
I am under a rheumatologist as I have symptoms of RA as my dad severe RA serum negative erosive type. They can not see my inflammation on scans and have no real swelling but given my CVID I won't show anyobodies to prove it but given that and celiacs they feel I could have Autoimmune RA. So they put me on sulphazalazine t see if it would do anything. I don't feel it is, and am not too keen on being on somthing where they have no official proof of inflammation. am also under an orthopaedic consultant who has just done a hip arthroscopy to remove extra bone and carriage that was causing pain and he said he could see slot of inflamed fluid in my joint that was not seen on the scans and feels I do have arthritis type picture. Has anyone else been put on arthritis meds without complete proof? How does it impact on IVIG of you are then give Arthritus meds?
I am under a rheumatologist as I have symptoms of RA as my dad severe RA serum negative erosive type. They can not see my inflammation on scans and have no real swelling but given my CVID I won't show anyobodies to prove it but given that and celiacs they feel I could have Autoimmune RA. So they put me on sulphazalazine t see if it would do anything. I don't feel it is, and am not too keen on being on somthing where they have no official proof of inflammation. am also under an orthopaedic consultant who has just done a hip arthroscopy to remove extra bone and carriage that was causing pain and he said he could see slot of inflamed fluid in my joint that was not seen on the scans and feels I do have arthritis type picture. Has anyone else been put on arthritis meds without complete proof? How does it impact on IVIG of you are then give Arthritus meds?