hello, I'm back...

[mitchellle]

I'm here, long time no speak with some of you.
For those of you I don't know, I'm Lora, and I was the token American here (and better established on the PIA board) a while back.
Nice to be back.

[s162216]

Hi Lora, nice to hear from you again. It seems such a long time since the PiA board was around and this forum was started up to succeed it. We do have a few more American's on here now (as well as quite a few Canadian's as well) and I'm sure that you'll be a useful resource to them as you were always very knowledgeable regarding health insurance in the States and all that sort of thing.

Sam

[mitchellle]

Thanks Sam. I've gotten more than a bit disillusioned with the US based programs lately, and I really need a PI home that doesn't involve discussion of health care reform.
My disease has progressed during the last year, and it's likely that I will be diagnosed later this year with additional PI anomalies. My immunologist is now of the opinion that I have a never before seen immunodeficiency and is unable to solve it beyond the traditional ivig/scig, so off to another clinic I go, on his request.
Of course, the thing that hasn't changed is I miss you folks.
(waving at john)

[s162216]

Sounds like things are not going too well then, I hope your able to find out whats going on. Luckily we don't get too much discussion about healthcare reform etc as we try to dis-courage political related things; my view on it is that we're here to support each other as patients, and all politics discussion ever does is alienate people and cause disputes. Plus being mainly UK based we don't obviously really need to discuss it!

(Note, I edited your post to tag John, that way he's more likely to see it the next time he comes on as it'll alert him to it. Use the little @person symbol on the quick reply buttons, then type in John etc's name and click on them when they come up if you want to use the feature in future - its quite useful to alert others)

Sam

[john]

Hiya Lora,
How nice to see this post and to realise it's from YOU!!!
Your wise words and lovely sense of humour are something I have missed since the old PiA forum days.
I'm so sad to hear you have ongoing issues, but knowing you as I do I'm sure you're not going to let it beat you!!
My little shop of horrors continues to grow, mainly things that they can't or don't want to link to my immunodeficiency....so we deal with 'em as they crop up and patiently wait for the next one.
Latest is a heart murmur caused by a leaky valve, add to that gallstones, portal hypertension, bleeding oesophagal varices, peripheral neuropathy.....you get the picture!!!
Good news though, the diarrhoea has finally gone away!!!!
We play silly word games here to keep the old pot boiling, please join us and when you want to rant and rave, we'll listen!
Fab to have you back Lora
John

[catherinenorton]

Awww isnt is just fab to have her back....i miss you all :-) Sorry to hear you are having a rough time John but love to see you keep going with a great sense of humour
Catherine

[john]

Hi Catherine,
Blimey, this thread is turning into a nostalgia fest, but there's nowt wrong with that!
Hope all is well with you, I know things will never be perfect for us, but I guess they can at least be good enough to muddle by!
I'm really happy to hear from you
Best wishes - John