Low White Blood Count

[kaha6373]

Has anyone with CVID experienced a low white blood count?


K White
VA

[glowing]

I haven't but no doubt someone will be along soon with more interesting comments. I thought I would just say 'hi' and welcome to the forum.

Glo

[john]

Hiya,
Lots of us have low neutraphil counts, mine hovers around 1.0, and causes the docs to panic every so often.
I would expect that someone better qualified than me will give you more information.
In the meantime welcome to the forum and keep us in touch!

[susand]

I second what John shares. I too have a low neutrophil count. The rest of the white cells are also on the low side quite often. I have Lenograstin injections twice weekly which keeps my count around 1.0. Without it, the count drops and around 0.5 is a signal to our immunologist for admission. I have recovered from B-cell Lymphoma and have a history of blood and blood marrow problems. Very sensitive marrow!
However, the hope is that once I am able to clear the Hep C virus (which I hate to say, I received through blood transfusions in the past) the neutrophils and blood levels will recover and remain stable. The next treatment - third time lucky?! - I am waiting for with a wild patience!
I have heard of other PID patients who also have a low white count. But what is low / normal anyway? I suspect we all have our "normal"