Christmas Holiday Infusion Plans

[john]

Hi all,
With Christmas and New Year just around the corner, I am having to think about my infusions during the holidays.
Usually I infuse every Tuesday here at home, and because I need quite a big dose (90mL), it takes me two and a half hours and leaves me tired and swollen, so the thought of doing this on Christmas Eve and New Years Eve is not exactly appealing. Also we are going away for a few days at Christmas and infusing in someone else's house is not realistic.
I think I will bring my own infusions forward two days in each case. Won't exactly make me popular with Sue and the holidays preparation, but it highlights a problem I hadn't anticipated when I did IVIg in the clinic!
What will you guys be doing? Maybe you can give me some new ideas!

[s162216]

I was lucky in being able to get an appointment for my IVIG at Addenbrookes on the 23rd at 13:00, I was praying that they would have something at a suitable time on that day as it would have just been a nightmare having to have it on the 24th as I usually don't feel quite 100% the next day which would be a bit of a downer on Christmas. Either that or they would have been bound to offer the 27th or 28th which would perhaps have been even worst as all the buses to and in Cambridge would have been running the reduced Sunday timetable.

I would just shift it back a couple of days like your suggesting as its probably the simplest way of getting around the problem.

Sam

[mali42]

Hi john

That's one of the good points about home infusion, we can adjust the times we do them to suit ourselves, I had to bring mine forward to wed instead of Sunday because Pat has had a hernia op and can't help me for a few weeks, she is doing well now and its nice I can help her for a change, I'm still struggling with the ironing though (if you believe that you will believe anything lol)

Malcolm

[john]

Hiya Malcolm,
I'm sorted now, simply brought them gradually forward to Mondays, so the holidays are free!
I'm still not very happy with the DIY treatment, so much easier and less bother letting a professional do it for me!!
Poor Pat, I hope she's feeling better now, sounds like you have a lot of cooking and cleaning to add to your ironing over the next few days!
Are you managing to keep infection-free these days? Everyone here , me included, is coughing, I think I will have to break open a new box of antibiotics soon!
Have a great Christmas and a healthy new year from all of us.... John

[mali42]

Hi John
No I haven't escaped and I'm on my 4Th week of antibiotics and hope I start to feel better soon, I even woke up with the dreaded night sweat (YUCK) and the last time I had one of those was over 9 years ago, Pats doing well and has taken over most of her usual roles except for the heavy lifting,

I can understand going from 3 weekly ivig to weekly sub-cut must be a pain but if it keeps you healthy that's the main thing.

We put our tree up yesterday and I'm starting to feel the Christmas spirit.

Merry Christmas to you both and a happy new year.

Malcolm