Jeffrey Modell Foundation (USA)

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The Jeffrey Modell Foundation is one of the two national PID patients organisations of the USA. Set up by Fred and Vicki Modell in 1987 memory of their son, Jeffrey, who suffered from, and ultimately died from complications of primary immunodeficiency, the foundation aims to:

• To make a world of difference in the lives of patients with Primary Immunodeficiency.
• To affirm our absolute commitment to clinical and basic research in order to better understand and treat Primary Immunodeficiencies. 
• To serve as a national and international source for the dissemination of information and education into the diagnosis and treatment of genetic immunodeficiencies.
• To serve as a tireless, compassionate advocate on behalf of patients and families to assure their access to excellent and comprehensive care.
• To promote public awareness of Primary Immunodeficiency diseases through programs involving our lawmakers as well as lay, scientific, and medical communities. 
• To affirm our commitment to turn pain, despair and suffering of immunodeficient children and adults into comfort and hope.

The foundation provides a great deal of information on PID on its website (link below), as well as maintaining a list of 'expert' PID immunologists worldwide, it also acts as an advocacy and lobbying body on behalf of PID patients, and funds/supports much needed research into PID. Its highly recommended to visit their website for information whether you should be in the USA, or elsewhere in the world.

Jeffrey Modell Foundation Website

Jeffrey Modell Foundation Facebook Page