IPOPI - An International PID Organisation
Jan 20, 2013 16:31:37 GMT
Post by s162216 on Jan 20, 2013 16:31:37 GMT
The 'International Patient Organisation for Primary Immunodeficiencies'
IPOPI Website
This is an international organisation that aims to:
- To ensure optimal access to early diagnosis & care
- To develop, strengthen and support National Member Organisations
- To enhance IPOPI and PID visibility globally
- To increase efficient governance of a well resourced developing organisation
It is an 'association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide'
There are many useful resources on their website, including the list of immunoglobulins available in each country which may be useful in case you are going on holiday or thinking of emigrating.
Definitely a useful resource for PID patients.