Iron infusions

[crocker]

just got a phone call to bring Curtis into hospital to receive iron infusions which he will get 9 drips of over the next 18 days , that's one every other day.Does anyone else have experience of this .He had 6 last year but it was done over a 6 week period.We live an hour away from the hospital so I suppose we will be ready for a break by the end of it.They helped the last time but only for a few months and then his iron levels started to drop again.We are also hoping to go to gosh to see professer bobby Casper just before Xmas so I have a busy time on my hands with Xmas so close.


Lorraine

[john]

hi Lorraine,
I can't help you with any insight on this.
I really hope things will be different for Curtis this time and that the infusions will have a lasting effect.
Good Luck with your visit to GOSH. The Christmas Lights are brilliant in London this year, so enjoy them when you're here.
Hope that goes well and that you get your Christmas well organised!!!!

[liz2mac]

Hi Lorraine,
I have no personal experience of this, but had a friend who used to have these infusions regularly. I know he found that they hel;ped, but he didn't enjoy having them as he said the infusions were uncomfortable. How has Curtis found them? I know we all react differently to different things so maybe they don't affect Curtis in this way?
Please let me know when you're coming over to GOSH, I'd love to come to London to meet you.
Liz

[crocker]

Curtis got iron this time last year also and it worked for a while no he is back to square one again.He got six infusions last time over six weeks this time he is having nine over 18 days so really hope it goes okay. Don't no the date for London yet they said they would ring a couple of days before or date which is short notice but I will let you no as soon as I no because I would like to meet you to.He is also getting his product changed to a more concentrate one so it is going to be busy and Xmas as well.Role on Febuary till I am of to Florida for a break. Lorraine

[liz2mac]

Hey can we all hitch a ride to Florida with you? (lol).Its going to be hectic for you, lets hope the additions to Curtis' treatment regimen at least give hima bit more energy. I'll do my very best to get to London when you're there Lorraine. Just let me know when you do and hopefully we'll finally get to meet up.
Liz