CVID Cousins

[glowing]

I'm very excited as I've just found out that one of my numerous cousins living in Canada, whom I've never met and knew nothing about, has CVID. Her grandfather and my grandmother were siblings, along with eleven others. She was diagnosed eighteen years ago and attended hospital for fifteen years but has been on Scig for three years. Thanks to the internet I'll be able to learn about her experiences and how she coped all this time. Just thought I'd share this with you.
Glowing

[mali42]

Thats great news Glowing, how on earth did you find out you had all those cousin ?

My mum for some reason stopped visiting her and my dads family when i was about 7 so i have lots of relatives living in wales and yorkshire who i don't know which is sad.
Malcolm.

[glowing]

Hi Malcolm.
My parents stayed in touch with three of the Canadian relatives and used to put them up when they came over.
My mum found relatives through Genes Reunited.
Glowing

[liz2mac]

Hi Glowing, that is so intersting. I have cousins in New Zealand and I'll swear that one of the children of my cousin has as undagnosed CVID given her symptoms, but for some reason they will not get it investigated. She's coming to Manchester next years so we'll see if we can work on that!
Liz