Thank you samuel

[mali42]

It looks like I'm first to post, thank you samuel, At least we can have a forum again and its very sad the pia is closing, I still can't believe this has happened so quickly,
And we have a spell check
Malcolm cvid

[s162216]

I can't believe it either! One minute everything was purported to be fine, just a bit more money was needed and the next its closing! Theres some really good information from the PIA and one of their leaflets on PI certainly helped me when I saw my consultant for the first time and he told me that I had a condition that was very rare and would require IV or SC infusion for the rest of my life! Although I tried not to show it, he could tell I was worried and gave me a leaflet from the PIA about CVID. That certainly helped to reassure me.

I actually took the liberty of saving all the PIA's publications on their website as their extremely useful and for all we know could be lost forever when it goes under and if it never gets started up again.

[catherinenorton]

hi there....thankyou so much for creating this forum Samuel.I know the support was a life saver when i was diagnosed and i became friends with my pia family. xx

[barbfrombc]

Hi everyone ... I just wanted to add my thanks to Samuel for creating this space.

Barb from BC

[keziah]

Hi - and thanks for so quickly setting something up so the PIA posters could still have somewhere to post. I too was most thankful my consultant suggested I look up the PIA and had the board for all those questions when being diagnosed.

Keziah - kept same name from PIA board.

[marie]

Thank you Samuel! I've gone from weepiness to happiness. It will be wonderful to continue these friendships from PIA UK.

Best regards to all! Marie

[liz2mac]

Samuel, I'm SO glad that you found the leaflet on CVID helpful, it's what Alan & I wrote all those years ago. In fact an awful lot of the patient literature that the PIA was using originated from the work that Alan & I did for the HGG society. Because of this I think that the intellectual propert rights may belong to me in view of Alan's death. I am putting things in place to investigate this and other things. Does anybody remember the first daus of the HGG Society? Liz