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Goods syndrome

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realife
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Posts: 1

Goods syndrome Mar 7, 2017 3:12:43 GMT

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Post by realife on Mar 7, 2017 3:12:43 GMT

I was diagnosed with Goods syndrome a year ago. I was wondering if anybody has this also. I guess it's pretty rare. I also have a lot of GI issues, I have been on Infusion treatments since last may, this is a new road for me, I was wondering if anybody has these issues.
Thanks Realife