Hi - An Important Message from the Forum
Jun 11, 2016 14:47:25 GMT
Post by s162216 on Jun 11, 2016 14:47:25 GMT
Hi all Primary Immunodeficiency Support Forum Members!
Sorry if it has been a very long time since I last contacted you all, but unfortunately I've been very busy in my personal life with various things and have not been able to give the forum much attention other than looking at the activity levels and replying to threads.
Whilst I don't want to make this sound like a plea, I feel I need to be blunt in the message I'm trying to get across in this email. To put it simply the forum now has very little posting activity, to the extent that it's probably only one post a week if that and members who register are getting few if any replies to their threads. Whilst we keep getting continued member registrations and increasingly higher numbers of "likes' on our Facebook advertising page (over 500 now) unfortunately this is not translating into posting activity - out of the last 62 members to register less than 10 have actually made a single post.
As you are hopefully aware, the purpose of the forum is to get patients with primary immunodeficiency conditions and their parents/families/carers etc together for talk and discussion. Sadly at the moment this seems like a lofty goal which is remaining unfulfilled; the forum has been going for just over 4 years now, and whilst the ways in which patient support can be obtained have changed (via Facebook especially) I still hope that we can act as a valuable source of patient support with our "back catalogue" of threads, member stories, quick information sheets etc and our large pool of members who are from all around the World. I'll leave it up to you to decide whether you want to help us fulfil that goal or not, but if you want to help then you can very simply just by occasionally logging in to see what has been posted and reply to threads if you think you can be of help.
The forum is a collaborative effort or it will never work, and that needs to be recognised by all of you.
Remember that the forum can always be found at www.primaryimmuno.proboards.com and if you've forgotten your password then you can recover it at www.login.proboards.com/forgot/3391770 by providing your email address etc. Also just to alert you that your personal forum username is provided in the footer of this email.
Thanks,
Sam (Admin of PID Support Forum)
Sorry if it has been a very long time since I last contacted you all, but unfortunately I've been very busy in my personal life with various things and have not been able to give the forum much attention other than looking at the activity levels and replying to threads.
Whilst I don't want to make this sound like a plea, I feel I need to be blunt in the message I'm trying to get across in this email. To put it simply the forum now has very little posting activity, to the extent that it's probably only one post a week if that and members who register are getting few if any replies to their threads. Whilst we keep getting continued member registrations and increasingly higher numbers of "likes' on our Facebook advertising page (over 500 now) unfortunately this is not translating into posting activity - out of the last 62 members to register less than 10 have actually made a single post.
As you are hopefully aware, the purpose of the forum is to get patients with primary immunodeficiency conditions and their parents/families/carers etc together for talk and discussion. Sadly at the moment this seems like a lofty goal which is remaining unfulfilled; the forum has been going for just over 4 years now, and whilst the ways in which patient support can be obtained have changed (via Facebook especially) I still hope that we can act as a valuable source of patient support with our "back catalogue" of threads, member stories, quick information sheets etc and our large pool of members who are from all around the World. I'll leave it up to you to decide whether you want to help us fulfil that goal or not, but if you want to help then you can very simply just by occasionally logging in to see what has been posted and reply to threads if you think you can be of help.
The forum is a collaborative effort or it will never work, and that needs to be recognised by all of you.
Remember that the forum can always be found at www.primaryimmuno.proboards.com and if you've forgotten your password then you can recover it at www.login.proboards.com/forgot/3391770 by providing your email address etc. Also just to alert you that your personal forum username is provided in the footer of this email.
Thanks,
Sam (Admin of PID Support Forum)