shingles again

[dianesistern]

hi ive just come down with my secound bout of shingles 25 years after the first one before i was even diagnosed with cvid and boy is it more painful this time around its absolute agony it on my head face and neck and has caused deafness in my ear ime only a few days into it and have been put on antivirals but am concerned because my hospital wont treat me with my immunoglobulins until i am not infectious so its gonna do its worst i fear

[john]

hi diane,
sorry to hear about this, i can vouch for that pain cos i had shingles once, again before diagnosis.
when i've had herpes (which i am convinced came from my immunodeficiency treatment but always denied by the docs) the antivirals were excellent, and in fact i took them for about 6 months to really knock the virus on the head. i always had my infusions when taking the antivirals.
do you think they consider the danger is to you or to the other patients?
just a thought, get well soon - john

[marie]

Do you have Home Health services? My husband needed IV meds while he had something else (that I cannot now remember) and the hospital's Home Health department sent a nurse to our home. It seems that since you have shingles, getting your infusion now is more important than ever.
Anti-virals worked for me- three times! Best regards.
Marie

[dianesistern]

Hi everyone i am so happy to say that the anti virals worked really well for me and this bout of shingles did not last so long i have only had one week on the tabs tho and the hospital has said i can go if shingles are all dried out so i wont be missing any ivig treatments, still getting alot of the pain still and really tired but doing much better. Diane

[liz2mac]

Hi Diane,

So glad you're on the mend.
Liz.