My story - Lizig

[liziJ]

Hi all!

Some months ago I was asked to write my "CVID story" and present it to a pharmaceutical-type company.

It occurred to me that there may be some amongst you who would like to read it, so I've attached it here for anyone who's interested.

Lizi x

Attachments:

[slf]

Thank you Lizi
That was very emotional reading for me,I really felt for you,and of course it brought back some memories of my own.
Steve

[bamber]

Hi I have read some and can totally relate to the cough. Mine went on until I was on IV. I am older than you by a number of years so I think treatments were different. But not read your whole story yet will later. I was lucky to be diagnosed at 10 in 1976 - but not until after the lung damage had taken place like you.

Take care and will catch up later. Its good to share I think.

[john]

wow liz, this is a great read and tells a story that is just so impressive and inspirational.
you are, as i have always known, a person for whom the challenges of our immunodeficicencies are just that, challenges - there to be overcome, and that life is for living and experiencing it all, just like the lucky majority who don't have our hurdles and barriers.
your story will ring memory bells for all of us i'm sure, specially the way that the infusions promised so much and didn't deliver immediately!
i remember saying to probably that same consultant that maybe ivig infusions weren't for me as it was a year now and still no benefit!! his reply, stop them and you'll probably be back here in a few weeks with meningitis, so i continued, and the result 18 years later, is the relatively healthy boy you see before you!!!
keep up the good work liz, and continue with the gospel of hope, lots of newbies out there need that kind of news!!
love john

[mali42]

Thanks for sharing Liz
I can relate to so much of that and if I had a pound for every time I walked out of the doctors surgery with the words "you will be fine" knowing full well I wasn't going to be i would be rich :-)

i remembered your utube video at the time and it was brilliant and emotional so I had to watch it again.

Malcolm

[shulott]

Thank you Lizi x

[liz2mac]

Thanks Lizi, wow that brought back so many memories. The trauma so many of us have been through on our road to diagnosis still gives me the shivers.
Liz

[liziJ]

Glad some of you enjoyed reading it, or found that it reminded you of your own stories. It was very cathartic to get it all written down. Who knows - maybe one day I'll develop it into a full autobiography!

Lizi x

[syd]

Wonderful story. It was so interesting to read someone else's experience, compare it to my own, to see where I have been lucky or unlucky. I'm just at the begining though.

[liziJ]

[glowing]

Hi Lizi. I was hoping to read your story but when I open it it is just computer code type things and I don't know why I can't get it. My husband thinks it's because my computer is too old. Could that be the reason?
Glowing

[syd]

It's probably your version of Word? The document is a .docx file which is new. But I think it's possible to save the document for an older version of word and it'll work. Not sure, but hope you can read it!

[s162216]

If you download and apply windows updates then your office should have been updated too, but heres what you need to download and install so you can read it if you don't have Office 2007 or 2010 (I don't, I hate them!)

www.microsoft.com/download/en/details.aspx?id=3

Sam

[liziJ]

Try that Glowing!

Attachments:

[glowing]

Hi Lizig. Thank you so much for sending me your story. You are a very brave lady and I'm so pleased that things have turned out so well for you.
Glowing

[alittlebean]

Forgive my delayed response, just getting to grips with the forum. Really inspiring reading Lizig, thank you
L xx