Sphenoidal sinusitis

[glowing]

Hi.

I recently had a conversation with my immunologist and told him of my continued poor health since January. He thinks I might have Sphenoial sinusitis. For years I've had migraine type flashing lights, and continuous dull headaches on the top of my head and on my forehead, plus frequent bouts of conjunctivitis, which my GP said were caused by sinusitis. I don't get pain in my face or a runny nose but do have constant drainage to my chest which causes severe wheezing. An xray was requested in the past but the department refused to xray my sinuses as they don't show up xrays. Now my immunologist is requesting a CT of my chest and sinuses and has also arranged for me to have lung physio, which hopefully will help me to breathe more easily when moving around.

I'm not posting this as a General thread as I don't know if it's connected with CVID, that is what I'm wondering. Has anyone heard of, or experienced this type of sinusitis?

Glo

[mali42]

Hi Glo

I get the headaches regularly which can come and go very quickly and sometimes they are very bad where I can do nothing but rest until they go and they can last all day and sometimes 3 or 4 days slowly easing each day.

I have discussed this with my GP with her recommending I take an allergy tablet every day and also use the allergy nasal spray which seems to help.

Hope this helps

Malcolm

[glowing]

Hi Malcolm

Thank you for your reply.

I feel sorry for you suffering such bad headaches. I'm grateful that mine aren't like that. I hope to find out soon what is causing mine, whether or not it is due to some sort of allergy. If the CT scan rules out the more unusual sinusitis then I'll probably just continue with pain relief and nasal sprays.

Hope you're okay for now.

Glo

[dt]

I too after five months of infusions got a two week headache landing me in two ER visits. I tried everything. Found out the Magnesium 400 mg day helps since most migraine sufferers are deficient

[glowing]

Thank you dt.

Glo

[dt]

Jun 24, 2014 21:21:13 GMT glowing said:

Thank you dt.

Glo

You are welcome. I am not clear if the headaches are caused by it but my friend who has had IVIG for some years says the headache and fatigue are constant battles. Tomorrow is my sixth infusion so keeping my fingers crossed! I am asking for a slower flow rate tomorrow as well.

[s162216]

Jun 25, 2014 15:03:14 GMT dt said:

Jun 24, 2014 21:21:13 GMT glowing said:

Thank you dt.

Glo

You are welcome. I am not clear if the headaches are caused by it but my friend who has had IVIG for some years says the headache and fatigue are constant battles. Tomorrow is my sixth infusion so keeping my fingers crossed! I am asking for a slower flow rate tomorrow as well.

To be honest, slowing the rate is the simplest and usually most effective preventative for a lot of patients on IVIG having headaches (in my experience), and that should be tried first before going onto more drastic measures like switching the product, or taking medications.

Sam.

[dt]

Thanks Sam we will cut it down 50% today so it will be much slower and hope that helps.
DT

[milkmanmike]

The joys of Post-nasal drip, caused by sinusitis.. I too have been having these symptoms, minus any headaches, for three years now, The biggest problem I have is trying to convince GP's that Upper- respiratory, is NOT your lungs, chest etc, but Nose and Sinuses, I have had multiple X-rays and "let me listen to your chest"'s , all of which are clear.and only now Am I starting to get through to the Haematologist at my local hospital, what I require.. If you have a deep-routed infection, It needs to be expunged before starting on antibiotics, it worked for me in the 70's until I became immune to the medicine, how's that for Irony?

Peter

[dt]

Slowing the infusion rate to 94 has drastically reduced the headaches. Also premed Tylenol, Benydryl , zofran and torodal helps. I also use two bolus saline over course of infusion.