Shingles & Chicken Pox with CVID

[kc]

I have CVID & recently was diagnosed with shingles. Five days later while on antiviral I blossomed with chicken pox even though I had a very bad case at 16. Has anyone experienced this as well?

[mali42]

Hi kc
Iv had shingles 3 times but that was before diagnoses and touch wood never had it since, i can't remember anyone else ever having chicken pox come after shingles but it will be interesting to see if anyone has.

How long have you been on infusion ?

Malcolm

[john]

Kc and malcolm,
I had shingles just the once and long before I was diagnosed with immunodeficiency.
I did have some really nasty facial herpes when I started infusion, usually when I was sick. I know they are not the same thing but apparently they're sort of related to shingles and chicken pox. Anyway, what cleared the herpes up was massive acyclovir dosage over two years!
What does your immo have to say about this kc? There will hopefully be some more opinions here but I do think it's a job for your doctors!

[kc]

Hi again,
Apparently what I have is a rare complication maybe not for Zebras but the rash I have that started after the Shingles is from the virus (looks a whole lot like the chicken pox I had as a kid. Nothing like the shingles across my face.) Have been told that I may not return to work for 7-10 days until everything settles down. No fever & 4 days after last eruption. Am on antiviral also zofran as it has made me have a very upset stomach. I was able to my Subq Gammaguard now just have to rest. Hate that I will be away from my students but am resigned if contagious. Oh well...

[elained]

Dear KC, the shingles virus is very persistent. I know someone on the IDF site who has the virus throughout her body and has to be on the antiviral all of the time.

Shingles is a horror show.

And to think I even had the shingles vaccine in 2007 before I knew a thing about CVID. It probably didn't give me any immunity of course, but I don't know.

I am miserable enough from the regular herpes simplex cold sore virus.

Get well, stay well.

Hugs, elaine